Regional Chidhood Cancer Parent Organizations
Member of ICCCPO
International Confederation of Childhood Cancer Parent Organizations

Slovenia

  [Slovensko]

Children and adolescents with cancer in Slovenia are treated at the Hemato – oncological department of the Pediatric clinic in Ljubljana. The Hemato – onclological departement was founded in 1971 and is operating as the main republical centre for diagnosing and treating all kinds of children's and adolescents' cancer. At the Hemato – oncological department children and adolescents with all kinds of cancer are treated up to their 18 years of age. In Slovenia on average 50 children per year get diagnosed with various kinds of cancer.

Children and adoloscents with cancer continue their education during their treatment. The education is mostly performed individually by teachers and defectologists form the Hospital school which is cooperating closely with their main schools. Besides primary and secundary education the department has its own hospital kindergarten for preschool children. Besides school and kindergarten there are various other activities at the department which exonerate and entertain the treated in hospital: visits of various musicians, writers, the hospital olympics, dog and bunny visits, Red noses ….

There are two institutions in Slovenia which each in their own way take care of the well being of children and adolescents with cancer during their treatment and after it.

The foundation for helping children with cancer and blood diseases was founded in 1988. It is a humanitarian organization and its operation in solely dependent on donators. The foundation is managed by prim. Majda Benedik Dolničar, dr. med.

Address:
USTANOVA ZA POMOČ OTROKU Z RAKOM
Vrazov trg 1
1517 Ljubljana, Slovenia
IBAN SI56 0222 2001 6587 830,NLB d.d., Ljubljana, Slovenia, BIC (SWIFT) : LJBASI2X

Goals:
• to improve the quality of life of children and adolescents with cancer and blood diseases
• to improve the quality of therapy for various cancer and blood diseases
• to educate various health and education experts with the intent to improve the life quality of children and adolescents with cancer and blood diseases
• to finance research activities in the field of hematooncology
• to help parents in need

Since their beginnings the Foundation for helping children with cancer has:
• improved the living conditions at the hemato – oncological department by acquiring various requisites for school education and play as well infusion pumps and adequate intensive bed units
• taken care of a certain living standard by acquiring new medical and educational requisites
• financed and maintained two apartments for free of charge bording of parents (for approx. 5 families)
organized yearly winter and summer camps for children and adolescents with cancer
• organized daily excursions
• offered scholarships to children and adolescents with cancer
• offered financial aid to parents
• prepared and enabled printing of books for children and parents:
  • When a child gets cancer
  • Longterm effects of cancer treatment
  • Radiation according to a child's view

The Foundation Small knight is devoted to medical-psychological-social rehabilitation of cured adolescents after the age of 18 who were diagnosed with cancer in their childhood. It is operating since 1996 and is managed by prof. dr. Berta Jereb, dr. med.

The parents of children and adolescents in Slovenia do not have their own society or club but some of us feel the need to bond, exchange experience – opinions as well as the need for improving some rights for parents of children with cancer.

The representatives of parents attended the regional meeting of ICCCPO: in 2006 (Split) and in 2007 (Sarajevo).